Category Archives: Current Treatments

Anat Baniel and other crys for hope for CP

Here is an article that deserves a read.  We have personal experience with Anat Baniel because she treated our daughter about 10 years ago.  Our experience says that $3,000 per week can probably be spent better elsewhere, however, for a very mild case of CP, any type of movement therapy can help. However, any type of physio therapy is just too little, too late for a child’s brain injury.  Hence “The Idea for a Cure”

If you have money to burn, I would give you a list of therapies, and include Anat on that list.   We spent our whole life savings on treatments in the first five years.  Did they help?  We have no way to tell, because we don’t know what Alissa would be with-out them, but she is still non-verbal, not walking on her own, still needs a g-tube for supplemental nutrition, etc.   If Anat reads this, my guess is that she would defend herself behind a cloak of me being too negative, but that is Anat’s defense mechanism… not mine.

Mom hopes book will lend A helping hand

Sales will help pay for her son’s treatment for cerebral palsy

By Randi Bjornstad

The Register-Guard

Published: (Monday, Jun 11, 2012 10:38AM) Midnight, June 11


Story photo and/or graphicJessie Kirk Photography

Shasta Kearns Moore and her husband, Matt Millard, sit with their sons, Malachi (left) and Jaden James. Malachi has cerebral palsy, and his treatment is expensive. His mom has written a children’s book and hopes sales will help pay for the medical expenses.

Story photoJessie Kirk Photography

Shasta Kearns Moore helps her son Malachi stand up. Malachi, who will turn 2 this month, has cerebral palsy.


Loving parents will do just about anything for their children’s health and welfare, and Shasta Kearns Moore and her husband, Matt Millard, are no exception.

The young couple have identical twin boys — Malachi and Jaden James, aka JJ — who will turn 2 years old on June 26.

Within weeks of their birth, Malachi, the older by five minutes, was diagnosed with cerebral palsy. Although quick-witted and verbal like his brother, the little boy cannot sit or stand unaided.

So far, Malachi has benefited substantially from the Anat Baniel Method of treatment, which uses gentle movement to help very young children with brain injuries — such as the strokes that lead to cerebral palsy — create new brain-body neural pathways while their nervous systems still are pliable.

The therapy is labor intensive and expensive. And like many health treatments that are not yet considered mainstream, ABM is not covered by insurance.

So Kearns Moore — who graduated from South Eugene High School in 2001, earned a degree in journalism at the University of Oregon five years later and then worked at newspapers in Tillamook and Portland — decided to combine her writing and parenting skills in a children’s board book. It’s called “Dark & Light: A Love Story for Babies … (and those who read to them).” Kearns Moore hopes it will help raise enough money to continue Malachi’s treatment.

“We have used up all of our savings and have had to use credit cards, but we are determined to get this therapy that we think is best for him until we can’t,” Kearns Moore said. “I’m hoping that people will love this book and will want to buy it and maybe even pledge a little more to help Malachi.”

Kearns Moore has set a deadline of June 27 to raise $5,000, the minimum cost of printing 500 board books that can stand up to the handling and teething of their young readers.

As sometimes happens these days, a self-published book that does well may be picked up by a major publisher. If that happens with “Dark & Light,” Kearns Moore will be delighted.

“The book will always be dedicated to Malachi and his needs,” she said. “But if it brought in enough money, we could start a foundation to help other babies with cerebral palsy get this special therapy.”

She got the idea for the book one day last fall when she was lying down to rest while the twins were napping.

“I was thinking about their favorite books, which are simple images with no text,” she said. “I began to think how I could create a book of my own with the same concept but with words that would have a deeper meaning that both children and adults could appreciate. I came up with the concept of ‘dark’ and ‘light’ and how they relate to each other in a variety of ways.”

Since she posted her book offer on Kickstarter.com, an online clearinghouse where people with creative projects can gain community financial support in exchange for a “reward” — such as a copy of Kearns Moore’s “Dark & Light” or her earlier grown-up novella, “A Twist of Fate” — well over 100 people have made donations approaching $4,000. The way Kickstarter works, if the goal isn’t reached, nobody pays.

If Kearns Moore reaches her goal and can order the first printing, the books will be shipped to their new owners in early August.

When she was first pregnant, her husband continually teased her that she was carrying twins, Kearns Moore recalled. “Every time I had serious morning sickness, he would say, ‘That’s because it’s for two babies.’ But when the midwives first listened for a heartbeat, they could only hear one.”

At five months, she had an ultrasound, “and the image immediately showed a baby, and there was a little circle by its feet. We said, ‘What is that circle?’ and the technician said, ‘That’s another baby.’ I was in shock. After all that teasing, Matt was right.”

After her exam was completed, “about 16 medical professionals came in and said the babies probably wouldn’t survive because I had a too-short cervix,” Kearns Moore said. She went home and began what became 10 weeks of bed rest. The day before she had carried the babies for 28 weeks, contractions started, leading to a two-week stay in the hospital until the babies were born — without Caesarean section — just before the 30-week mark in the normal 40-week gestation.

At first everything seemed fine, but a week later a scan showed a small spot of blood on Malachi’s brain. The next week, the ventricles of his heart appeared swollen, and at the next check-up, doctors diagnosed cerebral palsy.

“I didn’t know anything about CP at the beginning, but I started doing a lot of research,” Kearns Moore said. She also started a blog, to share her own essays, pictures and poems about living with twins, one with and one without cerebral palsy, and share information about the Anat Baniel Method.

“It’s really a compelling way of looking at brain injuries in children,” Kearns Moore said, although the therapy applies to people of all ages with brain-related conditions such as stroke, Parkinson’s disease and multiple sclerosis. “The traditional methodology with kids with CP focuses on strengthening muscles, but ABM is the opposite — it’s brain-focused. It’s very slow and very gentle and works on the relationship between what the brain can do and what the body can do and supports the child’s ability to learn.”

Kearns Moore and her husband have taken Malachi to San Rafael, Calif., the headquarters of the Anat Baniel Method, for a weeklong intensive therapy, which costs $3,000. “When we’re there, we do two classes a day, each for an hour, with the therapists, who use some yogalike therapy and other movements,” she said. “It’s hard to see what’s going on, because it’s all happening in the brain. But after the first lesson, I couldn’t believe the change in Malachi — his muscles were so much looser, his ability to move was completely different.”

Continuing therapy, which costs about $700 per month, is available in Portland, where there are at least two certified Anat Baniel Method practitioners.

“I don’t know where Malachi is on the CP spectrum, but from what I’ve seen with this therapy, I’m optimistic — I think the results from this therapy are a research study waiting to happen,” Kearns Moore said. “Malachi’s fine motor skills are getting better all the time, and he speaks about as well as JJ. It’s the gross motor skills that lag. But we’re just thankful that he is verbal and such a joy to be around.”

http://www.registerguard.com/web/livinghealthfitness/28193566-41/malachi-kearns-moore-book-cerebral.html.csp

Current Treatment Links

 
Current Treatment Links
This section of the website contains links to many of the webs unlimited supply of resources. We have made an effort to screen the links we have posted. However we can not endorse the content of any website. Please use the information you receive from the web or any other source with common sense.  One of the amazing things that we have found is that we have collected literally hundreds of e-mails that support one treatment or another passionately.  Often they contain personal success stories.  We know people that swear by HBOT, g-therapy, Feldenkrais, FGF, cell therapy, etc. etc. The all share a passion for their favorite therapy. As we receive all these e-mails we have to ask ourselves, what treatments to provide our kids. If I tried them all, we would be broke and have traveled the world three times! Therefore, at BRIGHT we prefer to ask the question what are the common factors about all these treatments that are helping these people and why does one treatment help some and not others.  How can we isolate these factors, focus and enhance them to help others? That is really the quest of the BRIGHT Foundation. I hope that you will join us in the journey and share your knowledge.
Here are a couple of gold star, must see website. The menu above will take you to many additional site on more specific topics.

Kid Power: This is the one website to visit for current treatments!! A huge amount of extremely useful information. explanation and links to 100s of treatments, as well as travel info, the Sensory toys, etc. etc. A powerhouse of a website!

MUMS

Julie J. Gordon, MUMS, National Parent-to-Parent Network, 150 Custer Court, Green Bay, WI, 54301-1243, 1-877-336-5333 (toll free) 920-336-5333 920-339-0995 (Fax)

Email: mums@netnet.net Web: http://www.netnet.net/mums/

The Christopher Reeve Paralysis Foundation: Christopher Reeves vision embodies our vision exactly. Christopher’s goal is very clear. He wants to walk again. In order to accomplish this he has decided to make it happen with his own means. He organized a group of the best scientists in the world and he raised millions of dollars to fund his own research. His research is not bogged down by governmental reviews and paperwork, because he is funding it he can move ahead quickly and focused towards a cure. Read Christophers motivating letter of hope here.

CAN Foundation Cure Autism Now: This website and groups serves as an excellent model for what we can achieve. In just five short years they have raised over $5 Million dollars and made significant strides towards a cure for Autism. Lots to learn from this group

We would like to highlight a website from Dina. Dina has mild spastic diplegia CP and has first hand experience with many of the existing treatments we provide links to on our website. Dina has developed her own website and she writes a particurly powerful letter to Medical Professional and Parents of children with CP. It is interesting to hear Dina’s first hand experience and she can provide many valuable lessons for those of us that are trying to make choices for our young children. I also need to give Dina credit for many of the links that we have in this section of the website as she was responsible for getting many of them on the net years ago. Thanks Dina!!  Click on the following link to visit Dina’s site http://www.geocities.com/Heartland/River/1463/  be sure to her My Story and A Letter to the Medical Profession
Traditional Treatment
In this section I would like to highlight links to some of the best sites focusing on traditional treatments.

Physical & Occupational Therapy

NDT: Neuro-Developmental Treatment

The Bobath Centre The founders of NDT. The website gives an excellent understanding of the principles of this form of treatment direct from the founders

BOEHME WORKSHOPS is a clinically based continuing education provider. They specialize in providing training, video-tapes and text books with a specialized focus on children and adults challenged by both congenital and acquired injuries to the central nervous system. These guys have trained many of the professionals. Great for families to learn directly from the pros or for pros to brush up on technique.

Neuro-Developmental Treatment Association (NDTA)is the professional certification organization. We called them and they helped us to find qualified instructors in our area. Very helpful folks.

ICE is also a professional organization providing training seminars and videos. We have no experience with them.

Vojta therapy (reflexlocomotion)

Vojta therapy (reflexlocomotion) is a highly specialized type of physical therapy that is designed to primarily enhance the motor development of a child. The treatment has added benefits of improvements in cognition, fine motor, breathing, and digestion. Vojta therapy is quite well known and well received across
Europe and Japan and is expanding around the globe. The Vojta training centers are based in Germany and the Czech Republic. The method originated in the1950’s by a pediatric neurologist, Dr. Vaclav Vojta and is still being improved upon. Vojta therapy is based on responses and reflexes to specific stimuli
provoking muscle chain reactions as they appear in a typical child’s motor development. The treatment encourages those responses through specific positions and pressures applied.

SARA 4 Kids, LLC (Specialized Alternative Rehabilitative Approaches for Kids)Thanks to Sue Iwanski for contributing the Vojta information

Vojta Therapy Website 

 

General Links
Below is a collection of links in alphabetical order from our own research and from other great websites such as Kid Power,  and Pediatric Stroke Network

If you are the owner of any copyrighted material on this website, please contact us. It is not our intention to use any copyrighted material without permission.

Cerebral Palsy
National Institute of Neurological Disorders and Stroke Cerebral Palsy Info: NINDS is the US governments funding center. Almost all research is funded by NIH. This website gives a general explanation of CP and some of the research areas funded. As you will see, there is no mention of funding for a cure to brain injury. The focus is on treating the medical complications that occur because of the brain injury. ie Seizures and Spasticity.

ACUPUNCTURE

Acupuncture
Sedona Healing Arts

ADELI SUITWe do not have direct experience with this therapy. An adapted Russian astronaut space suit designed to put the body in proper alignment and to provide feedback between the muscles and the brain. 

Adeli Suit
Cerebral Palsy and the Adeli Suit
Cosmonaut Cerebral Palsy Therapy
Euro-Peds
Poland: Space Suit Technology

ALEXANDER TECHNIQUE – We do not have direct experience with this therapy.  A reeducation of the mind and body on how to use the correct amount of effort for each task performed in a day. It helps to relieve tension and can help with ease of movement, coordination, and balance.

Alexander Technique
The Alexander Technique
Teachers of The Alexander Technique
The Complete Guide to the Alexander Technique

AMINO ACID THERAPY – We do not have direct experience with this therapy.  Use of specially selected combinations of amino acids designed to control the exchange processes in the damaged brain cells.

Amino Acid Therapy
Amino Acid Therapies

AQUATIC THERAPY – We do not have direct experience with this therapy.  Physical & Occupational therapy that is performed in a pool heated to between 92 and 96 degrees. These warm temperatures help to decrease spasticity and along with the buoyancy of the water helps the therapist get the patient into positions that are not tolerable for them during land based therapy. This therapy assists in improving range of motion, cardiovascular endurance, balance, strength, proprioception, tactile stimulation tolerance, relaxation, ambulation and pain management. This therapy can be used along with land-based therapy to best meet a patients needs. Listed below are a few of the indications where aquatic therapy could be utilized: developmental delay, cerebral palsy, traumatic brain injury, diabetes, post orthopedic surgery, back pain, Down’s Syndrome, PDD, ADD, autism, sensory and vestibular involvement.

Aquatic Therapy
Aquatic Physical Therapy
A.R.N. Education
CMH PT/OT Services
MRH Aquatic Therapy Pool 
Aquatic Resources Network

AUDITORY INTEGRATION THERAPY – We do not have direct experience with this therapy.  AIT involves several components including some audiological work, behavior analysis and management, educational issues, and after-care counseling for the client and family. The most satisfactory results can be obtained when a multi-disciplinary team approach is used for the administration of the AIT program. SAIT recommends a multi-disciplinary team which could include (but is not limited to) specialists in the fields of audiology, psychology, special education, and speech/language.

Auditory Integration Therapy
Auditory Integration Training
Family Village Auditory Integration Therapy
SAIT–Society for Auditory Integration Techniques
AIT–A Checklist for Parents

 

BACLOFEN THERAPY – We do not have direct experience with this therapy.  Baclofen Pump–used for treatment of severe spasticity. A Baclofen Pump is implanted into the body that delivers a does of Lioresal Intrathecal directly to the spinal cord. It relieves spasticity with low dosages. Low incidence of side effects because the medication does not get into the blood stream

Intrathecal Baclofen Therapy
Inplantable Infusion Pump
Intrathecal Baclofen Overview
Intrathecal Baclofen Pump Page
Intrathecal Pump Implant (“Spinal Morphine Pump”) FAQ’s
Baclofen Pump Helps Spasticity in Children
Factsheet: Baclofen and the Baclofen Pump
Intraethecal Baclofen Therapy
Oral Baclofen Therapy
Use of Intrathecal Baclofen Therapy in Management of the Brain Injured Patient

BOTOX – We do not have direct experience with this therapy.  Botulinum Toxin–Injected into spastic muscles to weaken them. During the period that these muscles are weakened increased therapy helps to reach a greater range of motion and to increase strength in the non-spastic muscles. Helps to decrease scissoring of legs and decrease spasticity even after the Botox injections wear off. Effects are only temporary and injections have to be repeated about every 6 months to a year.

Botox
Botox Injection for Laryngeal Spasmodic Dysphonia
Botox: New Treatment in the Management of Childhood Spasticity
Botulinum Web
Use of Botulinum-A Toxin in the Management of Muscle Spasticity 
Botox Update 
Botulinum Toxin A in the Management of Spastic Gait Disorders in Children and Young Adults With CP 
Factsheet: Botox  
The Use Of Botulinum-A Toxin In The Management Of Muscle Spasticity

CONDUCTIVE EDUCATION – An education system used to develop problem solving skills in people with physical disabilities. Seeks to make it easier for persons to function at their maximum potential in society and teaches them to find their own solutions. Promotes self confidence and motivation.

Conductive Education
Ability Camp–Centre for Conductive Education
Beginning Steps to Independence Inc.–San Jose
Conductive Education Information Home Page
Listing of Conductive Education Centers
Moira Centre–Real Conductive Education
National Institute of Conductive Education
SPICE–Spokane Institute of Conductive Education

CONSTRAINED INDUCED THERAPY –  therapy used for stroke patients consisting of restraining the unaffected arm/hand so the patient is forced to use the affected arm/hand. This is thought to retrain the brain to be able to use the affected hand/arm.

CI Therapy
An Application of Upper-Extremity Constraint-Induced Movement Therapy in a Patient With Subacute Stroke
Constraint-Induced Movement Therapy: A New Family of Techniques with Broad Application to Physical Rehabilitation–A Clinical Review
Constraint-induced movement therapy for focal hand dystonia in musicians
Constraint-Induced (CI) Movement Therapy or Extremity Constraint Induced Therapy
Constraint-Induced Movement Therapy (CIMT): Strong Evidence Supportive of the Habit Retraining Model
Constraint-Induced Therapy: Ready for Prime Time?
Getting a Grip by Revving the Brain
Stroke rehabilitation – constraint-induced movement therapy
Stroke Victims Get Second Chance

CRANIO-SACRAL THERAPY – Cranialsacral therapy is the evaluation and enhancement of the wave like pulsations of the cerebral spinal fluid. Helps to steady the gait and to properly align the body.

Cranio-Sacral Therapy
Cranial Sacral Therapy
Integrative Healing Arts
Myofacial Release
CranioSacral Therapy: Alternative Medicine Therapies
The Craniosacral Therapy Association of the UK
National Down Syndrome Congress: Position Statement On
Osteopathic Center

DANCE – We do not have direct experience with this therapy.  Can help children of all ages and has many rewarding benefits such as: increased self esteem, better motor planning skills, socialization and group interaction skills, increased self awareness of personal and surrounding spaces, and an excellent avenue for also using verbal skills with song and dance!

Dance  
 

EEG BIOFEEDBACK – We do not have direct experience with this therapy.  A learning strategy that enables persons to alter their brain waves by making information about their brain wave characteristics available to them so that they can learn to change them. Electrodes attached to the head measure brain wave activity while you move certain muscles. Learn to use certain parts of the brain to move certain muscles.

EEG Biofeedback
Biofeedback Certification Institute of America
Cascade Center for Family Growth
A Comparison of EEG Biofeedback and Psychostimulants in Treating Attention Deficit Hyperactivity Disorders
Controlled Study of the Effects of EEG Biofeedback on Cognition and Behavior of Children with ADDs and Learning Disabilities
EEG Biofeedback in the Schools
Effects of EEG Biofeedback
Frequently Asked Questions
Future Health, Inc.
Neurological Processes of the Brain
For more information on EEG Biofeedback contact:
Pittsburg State University EEG Biofeedback Lab
Hughes Annex
113 Cleveland
Pittsburg, KS 66762
(316) 235-4593
EEG@pittstate.edu

EMG BIOFEEDBACK – We do not have direct experience with this therapy.  Used to train alternate cells of the brain that are not damaged to take over the task for damaged ones in brain damage such as stroke, head trauma, and cerebral palsy.

EMG Biofeedback
Changes in the hemiparetic limb with training
Center for Bladder Control
EMG Biofeedback and Strength Training
EMG & Oral Pharyngeal Dysphagia
How Effective Is EMG Biofeedback in the Treatment of Incontinence?
Mechanisms involved in neurite growth inhibition
Treating chronic hemiparesis with modified biofeedback
For a free information packet about biofeedback call the University of Miami School of Medicine at (305)585-6351

FELDENKRAIS – It provides environments for the nervous system to learn through touch and movement and develops sensory awareness to help people recognize habits of movement and posture

Feldenkrais
About the Feldenkrais Method
The Feldendrais Guild of North America
Feldenkrais Resources

FES/FUNCTIONAL ELECTRICAL STIMULATIONWe do not have direct experience with this therapy.  The principle behind this treatment is to deliver small electrical signals imitating the nerve impulses that have been blocked by brain or spinal cord injury. This therapy can be used with stroke victims, brain and spinal cord injuries, cerebral palsy and multiple sclerosis.

FES
Center for Functional Electrical Stimulation
Efficacy of Neuromuscular Stimulation in Enhancing the Upper Extremity Motor and Functional Recovery of Acute Stroke Survivors
Electrical Stimulation
FES Information Center
FES List
Shoulder Pain and Dysfunction in Hemiplegia: Effects of Functional Electrical Stimulation
Stimtech Electrical Stimulation Products

HIPPOTHERAPY/THERAPEUTIC HORSEBACK RIDING – We do not have direct experience with this therapy.  Therapeutic Horseback Riding–Therapy done while the person is on horseback. Helps with balance and can reduce spasticity. Also is great for increasing self-esteem.
The Camelot Center
Graduate Certificate Program in Hippotherapy
Hippotherapy
Hippotherapy
Hyperion Farm, Inc.–Hippotherapy
The NARHA
Pal-O-Mine Equestrian
STRIDES
Taking a ride helps learning to walk— Hippotherapy
Therapeutic Riding
Therapeutic Horseback Riding and the Feldenkrais Method

Hyperbaric Oxygen Treatment

HBOT – Pure oxygen delivered under increased atmospheric pressure in order to force more oxygen into the bloodstream.   HBOT has a huge interest among special needs parents globally. There is also a growing market that has sprung up around the world to fill the treatment demands of these parents.  The web has largely been responsible for the rapid spread of anecdotes from one parent to the next about the success of HBOT.  This in-itself is a very important and wonderful thing.  However, now if you search the web for the words “HBOT” or “cerebral palsy treatment” quite often you are directed to a commercial website promoting HBOT.  Even HBOTs biggest supporters will agree that HBOT is not a cure and not without risks.  Therefore, The BRIGHT Foundation wishes to give the webs best analysis of HBOT.  In the coming days (maybe weeks), The BRIGHT Foundation will work to try to give you a balanced understanding of the pros and cons of HBOT.  Please stay tuned.

In the mean time here a small sampling of links related to HBOT.

American College of Hyperbaric Medicine
UHMS
Kevin Fickle
H.B.O. and Cerebral Investigations In Stroke
HBO Patient Handbook
HBO Public Discussion List
HBO 4 R Kids
HBO Stories
HBOT for Developmental Disabilities including RS and CP
HBOT Online
HOT4CP
H.O.T. 4 R CP Kids Foundation
Hyperbaric Oxygen Therapy–Questions & Answers
Listing of HBO Centers
New Uses for HBO
Ocean Hyperbaric Center
Harch Hyperbarics
Dr. Harch’s Letter on HBO

Several of these links can also be found at the excellent site Kid Power.  You can also receive information from Mums, the cost for the MUMS information packet is $20.00.  

Julie J. Gordon, MUMS, National Parent-to-Parent Network, 150 Custer Court, Green Bay, WI, 54301-1243, 1-877-336-5333 (toll free) 920-336-5333 920-339-0995 (Fax)

Email: mums@netnet.net Web: http://www.netnet.net/mums/

MANUAL THERAPY – We do not have direct experience with this therapy.  the therapist puts the muscles into a state of relaxation before stretching begins. They treat both soft tissue and joint structures.

Manual Therapy
Early American Manual Therapy
Manual Therapy Research
North American Institute of Orthopedic Manual Therapy

MEDEK – We do not have direct experience with this therapy.  A physical therapy program for infants and young children. Works on helping to develop the gross motor skills of these children with a rigorous routine of therapy.

Medek
Medek

MUSIC THERAPY – We do not have direct experience with this therapy.  the use of music as therapy for the treatment of neurological, mental, or behavioral disorders.

Music Therapy
Canadian Association for Music Therapy
Helping Stroke Survivors Communicate
Music and the Learning Environment
Music Therapy
Prelude Music Therapy

NEURO THERAPY (IAHP, NACD)- We do not have direct experience with this therapy.  You can use a program from The Institutes, NACD program, or a trained independent neurodevelopmentalist. The Institutes uses a very rigorous program. Some parents find this very hard to follow. NACD is an offshoot of The Institutes and is less restrictive than IAHP.  A local therapist or an independent who travels to your area are probably the most convenient options.

NDT
Can-Do
Help With Learning
The Institutes for the Achievement of Human Potential
The National Academy of Child Development

ORAL BACLOFEN – We do not have direct experience with this therapy.  helps alleviate the signs and symptoms of spasticity. Is not effective for everyone.

Oral Baclofen
Baclofen
Oral Baclofen
Second Thoughts
We Move Baclofen Information

ROLFING – We do not have direct experience with this therapy.  The manipultion of the soft tissues or myofacial system to allow for proper alignment and organization of the whole body in gravity. Helps loosen up spastic muscles and smooths out gait patterns and helps keep the spine aligned.

Rolfing
Frome Physical Therapy
How Does Rolfing Work

SAMONAS SOUND THERAPY – We do not have direct experience with this therapy.  Provides a slight massage to certain areas of the middle ear (stapedius and tympanic muscles) opening the systmm to sounds previously shut out or never accessed. If the sounds that are made available to the auditory system are not threatening, then the stimulation of the auditory system and growth in this area and all of the related systems can be achieved. If the sounds are a source of continued irritation or if the system is overstimulated, then these very same sounds can become another source of shutting down of the auditory system. Hence, the use of sound therapy must be done with wisdom and caution, making sure that there are not adverse reactions, at least long term adverse reactions.” –taken from “Samonas Sound Therapy” by Kay Ness, Copyright 1999.

Samonas
Samonas Sound Therapy
The Whole Idea

THERAPEUTIC ELECTRICAL STIMULATION – We do not have direct experience with this therapy.  Therapeutic Electrical Stimulation–is a low level electrical stimulation that does not contract the muscles but is enough to get blood to flow to them in hopes of helping stimulate muscle growth. The electrodes are worn at night during sleep when the body rejuvenates itself the most, in order to get optimum benefit. The electrodes are placed on the atrophied muscles in hopes to get them to grow and counteract the over active spastic muscles or to just get hypo tonic muscles to gain strength. A person has to be evaluated by a qualified therapist and approved before they can begin therapy. Patients are followed closely while on the TES and reevaluated at least every six months to mark progress and determine if placement of the electrodes is providing the desired effect.

TES
The TASC Network
Myles Medical, Inc.–TES Electrodes

YOGA – Used to stimulate the cognitive and motor development of special needs children.

Yoga for the Special Child
TheraYoga

General Lnks:
Hits Links
382 Help for brain injured Children
http://www.hbic.org/index.html
241 Enabling Devices – Toys for Special Children
http://www.enablingdevices.com/
136 Family Village — Wisconsin Resources
http://www.familyvillage.wisc.edu/comm/wisconsin.html
122 MUMS National Parent to Parent Network
http://www.netnet.net/mums/
108 NDT Books & Videos
http://www.boehmeworkshops.com/cgi-bin/store/commerce.cgi?product=media&cart_id=850083_43115270263_8269

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