The BRIGHT Cerebral Palsy Repository

The BRIGHT Cerebral Palsy Cure Project (www.CPCure.com) has established the “CP Repository, a large-scale collection of data from our members with Cerebral Palsy, TBI, and other related brain injuries. We make this data available to researchers studying CP and other similar diseases. In addition to the Repository, we also have created the world’s largest database of existing published research, we call this the “CP Meta-Study”. This data bank includes research in basic brain biology, treatment methods, therapeutic methods, engineering, and technology. The BRIGHT CP Repository and the BRIGHT CP Meta-Study aggregate the results of existing studies and live data from our membership, so that collectively they can be analyzed and help lead to new findings and breakthroughs.

The following links lead to input forms for members to contribute data to the database.  Please choose the appropriate link to begin contributing data.   If you would prefer to have your data entered by one of our staff, or if you are a medical professional looking to gain access to our database, please contact us at donations@brightfoundation.org.

Section 1.) Privacy This section must be completed first.   Once you have chosen a 5 character username, it will be used to identify all data in BRIGHT’s databases.  Therefore, please keep your username private and remember it.

CP Meta-Study Input Form BRIGHT members should use this form to input information about existing research.

GMFM Input Form BRIGHT members should use this form to input monthly results of the GMFM test.

CP Repository – Section 2.) General History

CP Repository – Section 3.) Birth History

CP Repository – Section 4.) History of Injury

CP Repository – Section 5.) Medical Diagnosis and Issues

CP Repository – Section 6.) Current Development

CP Repository – Section 7.) Therapy and Treatments

 

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